MISCELLANEOUS RESOURCES


As Advocacy for Patients finds new resources, we will share them with you by posting links here.

bullet Toilet Paper Flowers - Frank J. Sileo, PhD, announces his book - available January 2006 - A story for Children about Crohn's Disease.

bullet govbenefits.gov - An excellent source of government benefits in addition to Social Security.

bullet Neighborhood Legal Services, Inc. - lots of information and links to resources

bullet www.diagknowsis.org - A website teaching patients how to ensure their diagnosis is accurate before undergoing life-altering treatment.

bullet www.crohnsandme.org - Pharmaceutical manufacturer UCB's website for patients, providing information about Crohn's disease.

bullet www.livingwithuc.com - Pharmaceutical manufacturer Centocor's website for patients, providing information about ulcerative colitis.

bullet www.ideaskids.com - This website is designed to provide support, education and resources for children, teenagers and parents who are affected by intestinal disease. IDEAS believes in supporting the abilities of people with intestinal disease, and educating patients, their families and their communities through public events and resources like this website.

bullet www.nolo.com - excellent resource where non-lawyers can find do-it-yourself legal texts as well as attorneys in your area.


bullet European Digestive Motility Centre - The EDMC is a non-profit virtual centre focused on guidance and consensual management of patients with severe gut motility disorders (i.e. chronic, sometimes severe pathologies such as achalasia, gastroparesis or chronic intestinal pseudo-obstruction).


bullet The Association of Gastrointestinal Motility Disorders - The Association of Gastrointestinal Motility Disorders, Inc. (AGMD), is one of the oldest non-profit organizations in existence with a focus on digestive motility diseases and disorders. It is an organization which focuses on education, the dissemination of information, advocacy, outreach, research, and support.


bullet Bursitis.org - Your Source for Bursitis information and Treatment Options. At Bursitis.org it is our goal to give readers an accurate source to research information that we believe will help educate them on Bursitis and treatment options.

Advocacy for Patients has not had direct experience with all of these, but we urge you to explore them -- and please share your feedback so we can evaluate the various organizations.